Influencer Hannah Campbell is honoring her late daughter Elliana Rose, who passed away at 10 months old.
“Today we dress with heavy hearts to celebrate a life that changed ours forever. This is for you, Ellie,” Campbell captioned a video shared via TikTok on Sunday, April 13, which showed her applying makeup, curling her hair and dressing in all black for Elliana’s funeral.
She also shared footage via TikTok of her husband Jacob Campbell and their other daughter Ember getting ready for the memorial.
Hannah announced on April 8 that Elliana had died less than one year after she was born with a rare skin condition called junctional epidermolysis bullosa (EB), which causes painful blistering. The condition is an inherited illness usually appearing in infants or young adults, according to the Mayo Clinic, and has no cure. Babies born with the condition are called “butterfly children” because their skin is so delicate.
As influencer Hannah Campbell mourns the death of her 10-month-old daughter, Elliana Rose, she is also doing her part to fight the disease that affected her baby girl. Campbell announced on Monday, April 7, that her daughter had died after a battle with epidermolysis bullosa, sharing a heartfelt message via TikTok in which she said […]
“In loving memory of Ellie,” Campbell wrote alongside a video shared via TikTok at the time. “She passed peacefully last night, wrapped in love.”
@ellianas_journey Today we dress with heavy hearts to celebrate a life that changed ours forever. This is for you, Ellie. #elliestrong #FindACureForEB #EBawareness #ourjourney #flyhighangel #fyp #EpidermolysisBullosa #BUTTERFLYBABY #babytok #babiesoftiktok #infantloss #funeral
♬ Rise Up – Andra Day
Her caption continued, “I don’t know what to do with myself today. I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so no other family has to feel this. Thank you for loving her with us.”
On the day of Elliana’s funeral service, Hannah shared another video via TikTok with her child’s dermatologist, Dr. Diana Reusch, who had traveled to attend the funeral.
“Hannah and Jacob knew that Ellie had EB, but they hadn’t gotten clarity yet about exactly what subtype Ellie had,” Dr. Reusch said in the video. “Ellie was not only at risk for extensive skin wounds, but also respiratory and Nutritional issues.”
Influencer Lauren Cummings Johnson and husband Wilson Johnson are mourning the loss of their 9-month-old daughter, Lily Ann. “Our sweet Lily Ann went to be with Jesus on Sunday, April 6,” Lauren and Wilson wrote in a joint post shared via Instagram on Monday, April 7. “She was exactly 9 months old, 9 months our […]
Children born with EB, said Dr. Reusch, are not expected to live past infancy. “Ellie was fighting for her life since the day that she was born,” she continued. “There’s no way that Ellie’s parents could have known ahead of time or prevented Ellie’s condition.”
Dr. Reusch added that there is currently “no cure for EB,” saying, “I can’t begin to tell you how awful that felt to tell Hannah and Jacob there is nothing that Ellie’s parents could have done to change what happened.”
“The encouraging news is that I do think there is hope on the horizon as science and gene therapy advances,” she continued. “We’re not there yet, but in the years to come I think we can get there.”
